Mlafou
Member Since 21 Mar 2013Offline Last Active Mar 02 2014 13:05
About Me
I am a single mother of a wonderful little boy with severe and fatal conditions. He is now 12 and outlives all the predictions and has overcome so much to be able to walk, talk the little he can etc. My son Alex was born 10-20-2000 and prior to that I was told he would never be born alive, I was asked to abort him, I went into preterm labor twice...the second time I had an ER C-SEC for him. It was said he had a slim to no chance of making his first night, then it was said that he would live a year never to walk, talk or function normally in any way. He was born with Klippel Feil Syndrome, Vateral Syndrome, Holoprosencephaly, Hydrocephalus, other congenital brain anomalies, failure to thrive, Cleft palate, GI Reflux, Bone anomalies in arms(bones below the elbows are fused together in both arms), feet(malformed toes), hands(Hypoplastic thumbs and taradactyl like pinkies), Hydronephrosis, Horseshoe Kidneys, Neurogenic Bladder and Bowels, sleep apnea, sleeepwalks, seizure activities, temperature regulation issues, scoliosis, Chronic Obstuctive Asthma, Vision and Hearing Impaired(requires glasses and hearing aids) Corrected Imperforated anus and tethered spinal cord. Sensory integration disorder, ADHD and mood regulation issues. Developmentally delayed in speech, OT and educationally. He has beaten the odds over and over again...he walks, runs, jumps acts like the typical little boy...in teenager mode now. He goes to school and although delayed is able to write, remember sight words, his speech is significantly delayed, and fine motor is delayed due to abnormalities in his arms and hands. He never gives up, he adapts to every situation he is presented with...he usually has a huge smile on his face and contagious laugh. He steals the hearts of all the meet him...and believe me he never gives your heart back. He is my pride and joy as I have said and no words can ever express the love and devotion I have for my baby boy.
I am a proud supporter of Children's Miracle Network, Make-A-Wish, March of Dimes, and Ronald McDonald house charities. I also support other family's that have children with special health needs.
Between all that I do for my son, when I do have the help, I take online classes in the Psychology field with a concentration of adolencent and child development. Ultimate goal is to get my Masters and open a center with Neuro-developmental, Psychology, Psychiatry, for children of all ages and ranges of disabities or mental health disorders, in order to give them the best possible treatment.
I also love to play games of course, listen to music (everything except rap), I write and publish poetry, and watch TV depending on the night it is and the show that is on.
Community Stats
- Group New Members
- Active Posts 74
- Profile Views 2,438
- Member Title Member
- Age 45 years old
- Birthday June 12, 1979
Other Details
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Location
United States of America